Thursday, March 19, 2009

Little Black Bear

Wow, have we been going through some things this week. We don't know if Nolan is taking a pre-requisite course for the Terrible Two's or what, but I can only compare his behavior to that of a black bear that has gotten into someone's house. Do you ever see those videos? You know, where they go through the house tearing everything apart, turning everything upside down and growling???? That's what happened to my sweet little Nolan. We think that he actually might be going through a growth spurt. He is quite hungry...just like the bear, too! We're hoping he calms down a little soon. He is wearing me out at night.

I decided last night to take him to Gymboree again so that he could get some of his energy out. He again played for the full hour and a half, sweating, running, everything. He loved it so much that we decided to have his birthday party there. He cannot get enough of it.

We went to the neurologist for our quarterly check-up today. She, too, was impressed with Nolan's progress. She feels that his other specialists are taking good care of him. We graduated to bi-annual appointments! Yeah! We will only need to see her outside of that if there's a problem. We seem to be getting good news on Nolan's health all around. They weighed him there and said he was 34 pounds. I thought he was 28, but Jeff has been taking him to his well baby appointments, so I must be behind.

Friday, March 13, 2009

We're in the WHITE ZONE!

Yesssssssssssssssssssssssssss! Today, Nolan had his developmental tests for 22 month olds. It tells at what age level he is for different categories. They take a score and put it on a grid. You either fall in the black range (very bad), grey range (bad to not so good) or white range (ok to excellent). Well, we FINALLY fell into the white range for a few categories!!!!!!!! Yeah Nolan! He was in the white for Fine Motor Skills, Problem Solving Skills and Personal/Social Skills! He was still in the black for Gross Motor Skills and Communication Skills. But that's totally ok. For Gross Motor Skills, most of the questions were things that he has not been taught to do yet so I have no doubt that he will learn. We have been the black range in all categories month after month after month after month for the last 13 months. Gosh, this has been a GREAT week for Nolan.

And, this is the first weekend since December that Nolan hasn't been sick or recovering from being sick. Can life get any better? Although it is still early in the weekend, I am very hopeful.

So, Nolan's new obsession is sticky notes. They are everywhere. I let him take a pad to bed because he *would not* let go of them. I went in a half hour later to check on him and he had posted about thirty of them in his crib and then fell asleep. Busy guy...

He also is of the belief that the calculator is a phone. He holds it up to his ear and talks into it constantly.

His new phrases this week are uh oh, oh yeah and oh no. The oh no cracks me up because there is intonation and it is very clear.

Monday, March 9, 2009

Unbelievable!

We took Nolan to the physiatrist today for his quarterly appointment. He said that Nolan was a completely different child physically than he was three months ago. He said that he could not believe how much he has improved. He said that his prognosis for him has changed signficantly for the better. He encouraged us to allow him to walk which is slightly contrary to our therapist's advice, but we feel comfortable with him walking as it keeps his hamstrings loose. The doctor said he had great range of motion and did not feel any tightness in his knees, hips or ankles. It was great, great news to hear. He said that Nolan could go forward with his theratogs suit, he has seen mixed results from it. He does believe that a little of everything has contributed to his success: night brace, day braces, therapy, ultrasound and activity. We knew that he was doing exceptionally well, but it's nice to hear it from the doctor. We look forward to Nolan gaining more strength and agility and walking full time soon.

His language has really been picking up and he is signing more frequently. I love to listen to him jabber all night. And, his singing is heavenly :o) except when he sings, "merrily, merrily, merrily". He sings it about three octaves higher than he should. It is so cute, but ear piercing. Ha, ha, ha.

Wednesday, March 4, 2009

Sick Again...

Just when I didn't think Nolan could get sick again...he came from the sitter's house on Friday with severe congestion. We are averaging one illness a month for 2009. That's not a good average. This time we treated it homeopathically and that seems to be working just fine.

To take our mind off things, Allie came over to play with Nolan while her mommy and daddy went on a date. Wow, I did not realize how much harder it was with two! Nolan has such an easy spirit most of the time, it's easy to keep track of him. Allie is full of life and I experienced things that I had never experienced as a mother before. She loves everything. I had to admit to her mother that I had lost her temporarily. Allie found her way into our storage ottoman where we keep the toys. So funny.

Of course, Jeff and I caught the wonderful cold and have been suffering as well.

Nolan had his x-rays this week to check for leg length discrepancies. We will get the results next week at the physiatrist's office. This week, we are having our quarterly check ups with all of the specialists. Nolan saw the ophthalmologist today. His recommendation was to continue patching, but increase it to three hours a day. He also said that it is likely that Nolan will need surgery to correct his eye sometime after he turns three. This gives us plenty opportunity to research more options and get other opinions. His physical therapist has recommended a theratogs suit. I am not 100% versed on these, but you can see it at http://www.theratogs.com/. They say that this will attempt to perfect his gait. We'll try anything non-invasive at this point. We have seen great results with Nolan's speech therapy and sign language courses. Every few days, he seems to be saying or signing something new.

We are preparing for our trip to Washington, DC. Jeff and I are going a day earlier to enjoy DC before all of my training and lobbying activities. We are so excited to go. This is Jeff's first time to DC. Our hotel is a block or two from Capitol Hill. It's a gorgeous view!

Cindy and Cole came over for dinner tonight while Daddy got his new cable installed. I was convinced they'd send a serial killer over, so Cindy came to support me. Then, the guy started explaining all the features and I was lost. I do not have brain power for that. Cole and Nolan had a great time playing together. It was so awesome to see them interacting.

Nolan has discovered the love of stickers, thanks in part to speech therapy. We have also found that he loves paint with water. His creativity is so sweet. He will be an artist like his Daddy for sure. His love of jazz music now has to be shared with none other than country! It was a surprise to us because we don't listen to country. And as my sister says, he loves the Free Credit Report.com commercials, too. He's so funny, he loves all these little things that seem so weird to me, but it's just his personality.

Nolan's social skills seem to have improved as well. He seems more interested in engaging other children. At least he did twice today. I feel so blessed to witness this little man's adventures and achievements. His smile melts my heart and makes me so thankful for everything.