I just noticed that three weeks have passed. I have been getting ready for Washington, D.C. and am growing increasingly nervous. I feel such an obligation to be effective. Since I was selected to be a part of Lobby Day, a lot of great things have come our way. We were chosen to be the featured story for the Midwest Affiliate, which includes 11 states, for the You're The Cure blog. I am not sure what I will totally be responsible for yet, but I said, "Yes!" From what I understand, I will be keeping a blog of the activities in DC. I was also contacted about using Nolan's story and picture for the Heart Ball here in Detroit on April 25. Also, they are sending out press releases to local media about me participating in Lobby Day so hopefully, that will generate interviews and above all awareness about perinatal stroke.
Nolan is doing amazing and we are continuing to sign. He recently tried to sign I Love You. He doesn't quite have it, but I knew exactly what he was trying to sign. It was so precious. And tonight, he said I Love You to me after I put him in bed without me prompting him. It brought tears to my eyes. I woke up yesterday on my birthday to the sweet sound of him calling me. His language has really been improving and now we are working on two word sentences. His physical and occupational therapy are going just as well. We're still waiting for his Theratogs suit and he will be getting new braces soon. He is almost grown out of the ones he has.
Nolan got the opportunity to go to two Easter egg hunts. His first one ever, he did well. He wasn't sure what exactly to do. They started the day with a puppet show which Nolan watched entirely without making a peep. He found a lid in the backyard and that was probably his most prized find. His second one was this past weekend and he really did a great job running around and grabbed a ton of eggs. He loved being in such an open space and running around. He certainly loves his freedom. We went to our friends house for lunch and a visit from the Easter Bunny. It was very reminiscent of the Santa Claus visit. Nolan had a great time pushing his friend Allie in a car on the sidewalks. And on Easter Sunday, we will be going to our first Tigers game of the season.
Jeff is in Toronto tonight with his parents watching a Tigers game. We will also be going to a Nationals game in DC. Hopefully, he will get his baseball fix this summer. Nolan said Baseball tonight for the first time and I videotaped it. I can't wait until he gets home tomorrow to show him.
Wednesday, April 8, 2009
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